Record Details

ALS Focus Wave 4 – Telehealth Survey

Harvard Dataverse (Africa Rice Center, Bioversity International, CCAFS, CIAT, IFPRI, IRRI and WorldFish)

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Title ALS Focus Wave 4 – Telehealth Survey
 
Identifier https://doi.org/10.7910/DVN/RMBES9
 
Creator The ALS Association
 
Publisher Harvard Dataverse
 
Description The NeuroVERSE record contains the following files:

  1. ALSFocusWave4_DataDictionary.xlsx – This is the data dictionary for surveys fielded in ALS Focus Wave 4.

  2. ALSFocusWave4_Telehealth.csv – This file contains responses to the Telehealth survey for people with ALS and current caregivers. This survey was available in Wave 4. This file contains a new ‘dyad’ variable indicating which people with ALS and caregiver participants are linked.

  3. ALSFocusWave4_Demographics.csv – This file contains responses to the Demographics survey since ALS Focus launched in February 2020. This file contains a new ‘dyad’ variable indicating which people with ALS and caregiver participants are linked.

  4. ALSFocusWave4_ALSFRSandVC.csv – This data file contains responses to questions on ALSFRS-R and Vital Capacity scores since Wave 1. Starting in Wave 2, participants with ALS could answer these questions on a repeated basis, but not more than once per calendar day.

  5. ALSFocusWave4_HealthStatus.csv – This data file contains responses to the Health Status survey since Wave 2 when the Health Status survey opened. Participants with ALS could answer these questions on a repeated basis, but not more than once per calendar day.
 
Subject Medicine, Health and Life Sciences
ALS
Survey
Focus
Telehealth
Virtual
Internet
Video
Cost
Clinical trial
 
Contributor Katsovskiy, Igor
The ALS Association
Neurological Clinical Research Institute, Massachusetts General Hospital