Record Details

ALS Focus Wave 1 - Insurance Needs and Financial Burdens Survey

Harvard Dataverse (Africa Rice Center, Bioversity International, CCAFS, CIAT, IFPRI, IRRI and WorldFish)

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Title ALS Focus Wave 1 - Insurance Needs and Financial Burdens Survey
 
Identifier https://doi.org/10.7910/DVN/J9TLXT
 
Creator The ALS Association
 
Publisher Harvard Dataverse
 
Description This NeuroVERSE record contains two files:

  1. ALSFocus_Wave1_Public.csv – This data file contains responses from both the Demographics survey and the survey on Insurance Needs and Financial Burdens, which were fielded in Wave 1 of ALS Focus. This file includes responses collected from February 13, 2020 through April 3, 2020, the launch date and close date of Wave 1, respectively. The file uses a ‘flattened’ format with one record per subject. Variables are organized across the columns with variable names corresponding to the data dictionary.

    • Subject_ID 199 is a test case and has been removed from the data file as of January 5, 2022.



  2. Wave 1_Data Dictionary_Public.xlsx – This file is the data dictionary for surveys fielded in ALS Focus Wave 1, including the Demographics survey and the survey on Insurance Needs and Financial Burdens.
 
Subject Medicine, Health and Life Sciences
ALS
Survey
Focus
Insurance
Financial
Costs
Stress
 
Language English
 
Contributor Sherman, Alexander
The ALS Association
Neurological Clinical Research Institute, Massachusetts General Hospital